Serious mitochondrial disease: new techniques to prevent transmission

Closed 21 May 2014

Opened 27 Feb 2014

Overview

New techniques have been developed that would prevent serious mitochondrial disease being passed from a mother to her children. They involve the use of disease free eggs or embryos from a donor. A change in the law would be needed for these techniques to be used in treatment. Draft regulations amending the Human Fertilisation and Embryology Act 1990 (as amended) to allow such treatments to be carried out are published for comment. 

Why We Are Consulting

We are seeking comments on the provisions of the draft regulations. The consultation poses key questions on which we would welcome responses. These include questions about the regulatory controls that should govern these treatments and the information that should be given to donors and the children born as a result of the donation.

What Happens Next

The answers to these questions will be considered carefully by the Government, after which a decision will be made about the regulations to be put before Parliament.

Audiences

  • Voluntary groups
  • Community groups
  • Charities
  • Civil society
  • Advocacy or support organisations
  • GPs
  • Nurses
  • Clinicians
  • Managers
  • Commissioners
  • Directors of Public Health
  • Doctors
  • Healthcare scientists
  • Allied Health Professionals
  • Care-Givers
  • Foundation Trusts
  • NHS Commissioning Board
  • Clinical Commissioning Groups
  • Regulatory body
  • Academic/ Professional institution
  • Local authority
  • Social care provider
  • Members of the public
  • Patients
  • Patients
  • Carers
  • Service users
  • Suppliers
  • Information providers
  • Information professionals
  • Informatics professionals

Interests

  • Children's health and development
  • Public health
  • Health protection
  • Health improvement
  • Health premium
  • Screening
  • Prevention
  • Primary care
  • Carers
  • IT
  • Informatics
  • Health and well-being boards
  • Funding
  • Commissioning
  • Health scrutiny
  • NHS Commissioning Board
  • Regulation